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medical records privacy workshop -- next Friday in Washington
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Workshop on Medical Records Privacy
CO-SPONSORED BY:
American Civil Liberties Union Consumer Project on Technology Computer Professionals for Social Responsibility Coalition for Patient Rights Electronic Privacy Information Center (EPIC) JRI Health Law Center
Friday, May 10, 9 a.m. to 5:30 p.m. The Carnegie Institution 1530 P Street, NW, Washington, DC
The U.S. Senate is considering legislation that would pre-empt most state laws on health care privacy, and create a new federal system regulating access to medical records. The proposed legislation, S. 1360 is controversial.
Many privacy groups say that S. 1360 provides far too much access to personally identified medical records by insurance companies, employers, schools, medical researchers, public health and law enforcement officials. These groups say that technology has outpaced policy, that the legislation fails to address the radical changes in the way records are stored and disseminated, and that the proposed legislation does more to promote access to records than to assure patients that their medical records will be private.
Supporters of S. 1360 claim that the legislation strikes a balance between the needs of industry and government and the patient's rights to privacy, and that extensive third party access to personal medical records is both inevitable and socially desirable.
The May 10 workshop features experts from a number of fields, and tackles some of the most thorny controversies.
9:00 am Who really controls access to medical records? What is coercive consent? What proposals would enhance patient control over access to records?
Lawrence Gostin, Professor of Law at Georgetown University Law Center and Professor of Public Health at Johns Hopkins University School of Hygiene and Public Health. Editor of JAMA's section on Health Law and Ethics, and former Chair of President Clinton's Health Care Task Force group on Privacy and the Health Care Infrastructure.
Mark Rothstein, Hugh Roy and Lille Cranz Cullen Distinguished Professor of Law and Director of the Health Law and Policy Institute at the University of Houston. Author of The Genome and the Future of Health Care, and consultant to several federal agencies.
Anthony Kraus. Mr. Kraus is a principal with the firm of Miles & Stockbridge, a litigator of invasion of privacy suits, and is active in efforts to preserve medical privacy.
10:30 am Non-consensual Access to Medical Records by Civil Litigants, Law Enforcement and Other Government Oversight Officials
Moderator, David Banisar. Policy Analyst, Electronic Privacy Information Center (EPIC), Deputy Director of Privacy International, Editor of Privacy Bulletin.
Don Haines, Attorney, American Civil Liberties Union.
Andrew Grosso, formerly the head of the first joint federal and state health care fraud task force. Vice Chair of the ABA Criminal Justice Section's Committee on Science and Technology, member of Association for Computing's Committee on U.S. Pubic Policy (USACM).
A.G. Breitensten, Director of the JRI Health Law Institute (HLI), Attorney with the JRI Health Law Center in Boston, Massachusetts. HLI represents over 20 AIDS service Organizations in the Boston area who are suing the Inspector general of Health and Human Services regarding the Inspector General's claimed right to access and disclose the identities of people receiving AIDS services from federally funded organizations.
Noon to 1:30 p.m. Lunch.
1:30 p.m. Management of Medical Records. What types of security are desirable and feasible in computerized health care information systems?
Professor Ross Anderson. Faculty member at Cambridge University Computer Laboratory and Security Adviser to the British Medical Association. Professor Anderson is a well known specialist in cyptography and computer security who has developed a security policy model for medical records.
Professor James Fackler. Professor of Anesthesia and Pediatrics at Harvard Medical School, Associate Director of Children's Hospital Informatics Program. Professor Fackler's research includes explorations of the use of the world-wide-web technologies for medical record integration, and systems and policies for protecting patient privacy.
3:00 p.m. Privacy of Mental Health records. State Efforts to Collect Medical Data.
Denise Nagel, MD. Psychiatrist in private practice, President of the Coalition for Patient Rights of New England, Chair of Medical Privacy Confidentially Project, Coalition for Patient Rights, Chair of the Medical Privacy Coalition.
Mimi Azrael, Attorney in Private Practice with the firm Azrael, Gann and Franz. A specialist in state laws concerning medical records privacy.
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REGISTRATION
Registration isn't required, but it is appreciated (it helps us plan). To register, please send a note to:
Manon Anne Ress Consumer Project on Technology P.O. Box 19367, Washington, DC 20036 Voice: 202/387-8030; Fax 202/234-5176 Internet: mress@essential.org
Name: Organization: Telephone: Fax: Internet:
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ James Love / love@tap.org / P.O. Box 19367, Washington, DC 20036 Voice: 202/387-8030; Fax 202/234-5176 Center for Study of Responsive Law Consumer Project on Technology; http://www.essential.org/cpt Taxpayer Assets Project; http://www.tap.org ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ```
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